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This article was published online first at www.annals.org on 27 October 2015.
The full report is titled “The Burden of Health Care Costs for Patients With Dementia in the Last 5 Years of Life.” It is in the 17 November 2015 issue of Annals of Internal Medicine (volume 163, pages 729-736). The authors are A.S. Kelley, K. McGarry, R. Gorges, and J.S. Skinner.
Health Care Costs for Patients With Dementia at the End of Life. Ann Intern Med. 2015;163:I-28. doi: 10.7326/P15-9035
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Published: Ann Intern Med. 2015;163(10):I-28.
Published at www.annals.org on 27 October 2015
Previous studies have measured what it costs society to provide end-of-life medical care, including the cost for specific conditions, such as dementia.
Previous studies have not measured what it costs patients' families to provide end-of-life medical care.
People aged 70 years or older who died between 2005 and 2010.
Study participants had previously enrolled in an ongoing study that collects information from a representative sample of U.S. residents about total and out-of-pocket spending for medical care, insurance coverage, socioeconomic status, health status, and cause of death.
The average total cost of end-of-life medical care for patients with dementia was higher than that for patients who died from heart disease, cancer, or other causes. Also, out-of-pocket spending for patients with dementia was a greater proportion of family resources than for those who died from other causes, especially for patients who were black, persons who had less than a high school education, and unmarried or widowed women.
The researchers had to estimate some costs.
The families of patients who die with dementia have more expenses than other families, and the burden is concentrated on families that are least able to manage it.
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Neurology, End-of-Life Care, Healthcare Delivery and Policy, Dementia.
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