Otis W. Brawley, MD; Llewellyn J. Cornelius, PhD, LCSW; Linda R. Edwards, MD; Vanessa Northington Gamble, MD, PhD; Bettye L. Green, RN; Charles Inturrisi, PhD; Andra H. James, MD, MPH; Danielle Laraque, MD; Magda Mendez, MD; Carolyn J. Montoya, RN, MSN, CPNP; Brad H. Pollock, MPH, PhD; Lawrence Robinson, MD, MPH; Aaron P. Scholnik, MD; Melissa Schori, MD, MBA
Promote models of care (such as comprehensive care, medical home, family-centered) across the lifespan that support quality of care and improved access to evidence-based treatment, including hydroxyurea.
Provide multidisciplinary care (for example, from health educators, social workers, case managers, physicians, and nurses) to improve the physical and mental health of patients with sickle cell disease and the financing structures to support such care.
Provide support for community health worker models (such as patient navigators, patient advocates, and peer advocates).
Provide support for coordination and comanagement of patients with the use of telemedicine.
Ensure better translation of findings to the patient and caregiver populations by using culturally or language-appropriate written and visual materials.
Implement health promotion models in educational interventions for adherence to therapies.
Engage and support community-based efforts to improve knowledge of the benefits and risks of hydroxyurea.
Improve federal, state, and local coordination of activities regarding sickle cell disease.
Provide support for cultural competency training across the interdisciplinary team regarding care for sickle cell disease.
Improve insurance coverage of sickle cell disease (for example, extend Medicare coverage to adults with sickle cell disease who are younger than 65 years).
Eliminate barriers that restrict access to public insurance.
Support ongoing training of health professionals to achieve and maintain competence in the care of patients with sickle cell disease, including hydroxyurea treatment.
Increase funding by government, industry, and philanthropic organizations for patients with sickle cell disease.
Encourage partnership and support of advocacy groups for sickle cell disease.
Develop enhanced information systems to better coordinate delivery of care in the health care system.
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Brawley OW, Cornelius LJ, Edwards LR, Gamble VN, Green BL, Inturrisi C, et al. National Institutes of Health Consensus Development Conference Statement: Hydroxyurea Treatment for Sickle Cell Disease. Ann Intern Med. 2008;148:932–938. doi: 10.7326/0003-4819-148-12-200806170-00220
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Published: Ann Intern Med. 2008;148(12):932-938.
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