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Personal Burdens in Hemophilia

RICHARD J. HIRSCHMAN, M.D.; and LIBBY E. ELY, M.S.W.
Ann Intern Med. 1972;77(4):651-652. doi:10.7326/0003-4819-77-4-651
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Recent technical advances in the production of plasma concentrates for the treatment of hemophilia have markedly improved the outlook of the hemophiliac patient. With the appropriate provisions, a wider range of activities, including travel and schooling away from home, can now be encouraged. Prophylactic treatment in selected cases (1) and home transfusion programs (2) have already minimized the painful disruption that bleeding has upon the hemophiliac's life. But, these treatment breakthroughs can significantly improve the lives of only a minority of hemophiliac patients as long as the critical economic and psychosocial problems associated with hemophilia remain unresolved.

To date, there

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