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On Being a Patient |

Complications of a Medically Complicated Child

Rani Ghose, PhD
[+] Article, Author, and Disclosure Information

From Bedford, MA 01730.

Note: Names have been changed to protect the identities of the patient and the treating physicians.

Requests for Single Reprints: Rani Ghose, PhD; e-mail, rani_ghose@hotmail.com.

Ann Intern Med. 2003;139(4):301-302. doi:10.7326/0003-4819-139-4-200308190-00015
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There is a phenomenon in psychology that states that active observers—people who are involved in an action—have a great need to predict and control a situation. This couldn't hold more true for me, the mother of a child who is “medically complicated.” My 20-month-old son is the actor, and I am the active observer. My son doesn't realize how unusual his life is, but I know that running from a meeting to a hospital appointment one or more times each week is not usual for many parents. I yearn to control this chaotic frenzy, but until Sam's health problems are under control, our lives will not be, either.





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