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Letters |2 February 1999

The Ethics of Using Web Technology To Find Research Participants

Piet C. de Groen, MD

Article, Author, and Disclosure Information
Author, Article, and Disclosure Information
  • Mayo Clinic and Foundation; Rochester, MN 55905
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IN RESPONSE:
In our institution, and in Minnesota, access to patient records for research purposes is not allowed without prior authorization (1). Before a patient visits the Mayo Clinic, a letter is sent wherein we request the patient's authorization to use the medical record for research purposes (2). Patients have the opportunity to consider what is offered in the privacy of their home without the additional influence or “coercion” of a physician or study coordinator. The new Minnesota law does not, however, prohibit contact with an individual to offer an opportunity to participate prospectively in individual research studies, even if the person has not given permission for their medical record information to be used for research purposes. Furthermore, data (such as billing records) contained in administrative databases, which are not part of the medical record, can be used to reach potential research participants.
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de Groen PC. The Ethics of Using Web Technology To Find Research Participants. Ann Intern Med. ;130:245–246. doi: 10.7326/0003-4819-130-3-199902020-00038

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Published: Ann Intern Med. 1999;130(3):245-246.

DOI: 10.7326/0003-4819-130-3-199902020-00038

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Print ISSN: 0003-4819 | Online ISSN: 1539-3704

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